If you don’t mind my asking, and if you do please tell me to pound sand; what made you believe it was a sinus infection? Been dealing with those quite a bit lately, at least I think so.
And, holy wow, you’re a greater man than I am.
I was having issues with clearing my ears (clogged hearing, trying to swallow to clear them, like when you're diving or snorkeling). Lots of post nasal drip and such.
In actuality, they misdiagnosed it twice over the previous two years, but since this is such a rare type of tumor (1 in 1.3M; so about 330 people in the US), it never crossed their minds. First time I went in, I had had a viral infection that I thought might have been measles (very rare in the US, but I had just come back from business in the UK, where it is uncommon, but not so rare). When I was in, they noticed my tongue was crooked (pointed to the right), but couldn't deduce why, and thought "Meh. That's odd, we'll note it in your record.". Second time I went in was because I had caused a 3cm tear in my left pectoral while bench pressing (and not paying attention), and they noticed my right ear was inflamed (or so they thought), and asked if I was in any pain. When I said no, they just commented that I should come in if I do.
About 4 months later I was having the sinus post nasal drip/ear clogging thing, so went in. They put me on antibiotics, and told me to call them in 3 weeks if the symptoms persisted, and that they would refer me to an ENT. After 3 weeks, no joy, so called, and they said it was a requirement to have a hearing test before seeing the ENT. Went into see the audiologist, and she knew (or thought she did) what is was right away, and advised me to not look up the diagnosis on the internet until I spoke with the ENT (said most of the info on the internet was dated or incorrect). She was generally correct, but not exact about the diagnosis. These tumors are called Glomus tumors, and occur in the ear (glomus tympannicum) or in the jugular bulb (glomus juglare). The ear type is more common (very similar to an acoustic neuroma), so she assumed it was that, since the "inflamed ear" was actually inverted; in that the ear drum was red, and the surrounding tissue was normal white/pink. The reason the ear drum was red was the tumor had grown to the point it was laying against the eardrum (hence my "muted hearing" and perceived congestion of the ear canal. After an CAT scan they realized that it was the (rarer) juglare version, and they are very hard to remove, even when they are small. These are benign tumors (non-cancerous), but they are highly vascular, so every time your heart beats, it pulses. That endless pulsation begins to wear through soft tissue and bone like mild sandpaper. As it grows, it begins to destroy more tissue and bone. My crooked tongue symptom was the tumor wearing through the cranial nerve that controls the tongue/vocal chord.
Anyways, two weeks go by, and I finally get a message from the ENT on my home phone message machine. Basically it was a "I'm very sorry. You have a Glomus Jugulare, and they are very tricky to operate on. I'm going to refer you to a specialist. I'm very sorry. click". It was a pretty substantial shot to the gut. Up to that point it was more or less believed that I'd lose my right hearing, but that would be it. Now it was something on a whole new order of magnitude. So, went and saw a specialist and an oncologist. Specialist was...unprepared for the appointment, and clearly nervous about performing a resection (surgery; he'd only done 4 of these in his 29yrs of practice), so I went and saw the oncologist, who flat out told me that in his opinion the tumor was inoperable, and radiation had about a 70% success rate with these tumors, but that he could refer me to one of the leading surgeons in the US (who happened to be 20 mins away at UCSD Skull Base Surgery Center). The oncologist had only seen four in his 32yrs of practice.
So, went and saw the specialist. Took about 45 mins to review all my medical records (different health care system, so had to hand carry everything over), came in and said "Yes, I can remove it". And when asked by my wife (she's the one who asked the first couple of surgeons) how many he had performed, he calmly replied "Your husband, should he decide to go this route, would be my 64th."
And so, four surgeries later (the main (3rd surgery) one being 14hrs long with five neurosurgeons working in shifts and about 35 medical staff, to keep me from croaking, (since this was a "secreting" tumor that was leaking catecholamines; which seriously screws/spikes your blood pressure)), they removed the majority of the tumor, cauterized the blood vessels feeding the roughly half that was left, and cut of the tendrils that had grown up into my brain case. They even did a nerve graft to my throat (which has been partially successful).
Sorry so long winded. Basically, symptoms were:
Perceived sinus infection (hearing clogged and post nasal drip)
Slurred speech (when even just having one drink, the nerve controlling my tongue would just go dead).
Severe fatigue; this is a very common one for this type of tumor, since the tumor eventually begins to compress the cerebral cortex lobe, which is what controls your basic functions like sleeping, breathing, etc.)
Loss of motor skill; this was more gradual, almost unnoticeable, except that my PRS/NRL shooting (I noticed) began to degrade. I felt/perceived that I was having a hard time transitioning between addresses on a barricade (for example). It was like your brain was screaming "move!", but your body was just diddy bopping down the road at it's own damned pace. NoLegs24 didn't know at the time, but he was giving me shit for being slow back then, and I was (internally) also wondering WTF was going on. I just chalked it up to getting old and slowing down. Nope. Again, the tumor was impinging my brain, so the neural pathways were compromised, and having to reroute the signals. In fact, after the second surgery (where they basically cauterize a majority of the blood vessels feeding the tumor, causing it to deflate slightly), the morning after I got home from the hospital, I was making a protein shake, and drop the cap on the counter. It bounced off the counter and without thinking I snatched it on the rebound out of midair without looking at it. It was then that I realized how much my motor functions had been compromised. It's still fucking scary when I think about it. I was living in a fog, and didn't even realize it.
Anyways, that's the gist of it, and the symptoms. These are extremely rare, so the odds of you having something similar are so remote, I would say you're more likely to buy a winning lottery ticket than have something like this.
My apologies to the OP for this diversion, but I tend to write about it on the internet when I get a chance, since there was jack shit for information about it when I went through it. And hopefully the webcrawlers will index the key words in this post, and it'll help someone else out in the future. The unknown was the worst part of dealing with all this. Especially when realizing if this had happened 15 yrs earlier, they'd have just told me to go home, make myself comfortable, and wait for it to run its course. Surgical techniques have improved that much in the last 15 yrs.